tag:blogger.com,1999:blog-8819477883457536778.comments2020-12-30T09:21:37.108+00:00Non-neurotypical NipperTillyhttp://www.blogger.com/profile/15665464372841227874noreply@blogger.comBlogger89125tag:blogger.com,1999:blog-8819477883457536778.post-77318792383757339622011-08-22T23:56:11.988+01:002011-08-22T23:56:11.988+01:00Have to admit I laughed at the spiderman thing, kn...Have to admit I laughed at the spiderman thing, know exactly what you mean, I have no idea how I'd make Sasha wear them either (for any longer than 2 seconds...)! I have a friend who's girl has had to wear White noise ear plugs, no chance of Sasha doing that either! I had my eyes lasered, easy route I reckon ;)Stephs Two Girlshttps://www.blogger.com/profile/09592292485187553690noreply@blogger.comtag:blogger.com,1999:blog-8819477883457536778.post-87825156150002197372011-06-23T00:18:15.720+01:002011-06-23T00:18:15.720+01:00Very impressed with 3 days! How did the appointmen...Very impressed with 3 days! How did the appointment go? My little man needed glasses & its taken us 3 months just to do the initial eye test to work out his prescription because he keeps having major meltdowns over having his damn eyes tested. It was trying to say the least!The Rambling Pageshttps://www.blogger.com/profile/05815994483015209286noreply@blogger.comtag:blogger.com,1999:blog-8819477883457536778.post-57461289587851287772011-06-04T00:03:37.361+01:002011-06-04T00:03:37.361+01:00That is impressive! We tried some glasses on S for...That is impressive! We tried some glasses on S for fun (I'm sure he will need them) and the designer ones are soooo cute! Probably not worth it though, they'll be broken before long I'm sure! <br />Good luck with the tests xAnonymoushttps://www.blogger.com/profile/10754562741952800845noreply@blogger.comtag:blogger.com,1999:blog-8819477883457536778.post-82827293957688995302011-05-29T16:50:03.899+01:002011-05-29T16:50:03.899+01:00Oh dear. I hope you can find the glasses that he ...Oh dear. I hope you can find the glasses that he will wear, if you need to. Thinking of you. xNicola/smilernpbhttp://www.smilernpb-smilernpb.blogspot.comnoreply@blogger.comtag:blogger.com,1999:blog-8819477883457536778.post-13268197915302749412011-05-29T07:38:23.007+01:002011-05-29T07:38:23.007+01:003 days! Am impressed!
Good luck!3 days! Am impressed!<br />Good luck!Casdokhttp://motherofshrek.blogspot.com/noreply@blogger.comtag:blogger.com,1999:blog-8819477883457536778.post-36999151592266977702011-05-11T11:23:02.683+01:002011-05-11T11:23:02.683+01:00I did a load of social stories for my Little Man (...I did a load of social stories for my Little Man (I use to blog about him over at superlittlemne but am now on a new blog)and even though they are 7 they are quite effective especially on the social front. When I looked into doing them the examples I found on the net were quite long winded really - too many words for my little man. I made my own which were more pictorial, with very, very basic words around them, so he could try and read along with me to 1) reinforce what they were saying and 2) to help his reading. I can post a few on my blog if you are interested in seeing how I did them. The other thing I did was base them on his current obssession which at the time was supermario. This was great until after 2 years he found a new obsession!<br /><br />As for the honesty bit, I know that one well, but was really relieved to hear about my friends perfectly normal little boy. My friend took another little girl home after school to help the mum out and when she dropped her off, one of her twins looked at this mother (perfectly normal, no problems little twin) and said 'well, you really do need to lose some wieght don't you?' My friend said she nearly died, told him off for being so rude and made him apologise and then rang the mother once her boys were in bed to apologise again and explain he had never done anything like that before. Luckily this mother laughed about it and said that he was right and infact it had given her the boot up her backside to actually do something about it. But it could of been oh so different!The Rambling Pageshttps://www.blogger.com/profile/05815994483015209286noreply@blogger.comtag:blogger.com,1999:blog-8819477883457536778.post-24096742471636415212011-04-27T15:05:25.335+01:002011-04-27T15:05:25.335+01:00I think all kids say embarrasing things, but it is...I think all kids say embarrasing things, but it is always mortifying when they do XThe Vintage Kittenhttps://www.blogger.com/profile/04888446870064459049noreply@blogger.comtag:blogger.com,1999:blog-8819477883457536778.post-62978124788132509962011-04-22T19:10:26.626+01:002011-04-22T19:10:26.626+01:00Yes similar holiday problems here, even getting ou...Yes similar holiday problems here, even getting out of the house is a logistical challenge! I still haven't really started using social stories yet, but the best expert I know is jazzygal at http://jazzygals-steppingout.blogspot.com/. Hope that helpsLooking for Blue Skyhttps://www.blogger.com/profile/10010049814419812468noreply@blogger.comtag:blogger.com,1999:blog-8819477883457536778.post-68806519400177140902011-04-17T07:38:16.132+01:002011-04-17T07:38:16.132+01:00Awww. I know those moments. But seriously, it...Awww. I know those moments. But seriously, it's something ALL kids do, and you've just got to hope that they don't (kinda like a 'hold your breath moment! lol).<br /><br />My biggest fear is when one of mine says to me (loudly) 'is that a man or a lady?' and erm, Mummy doesn't actually know. What to say?! <br /><br />I hope he enjoys his sessions. xxAnonymoushttps://www.blogger.com/profile/14313560807695855956noreply@blogger.comtag:blogger.com,1999:blog-8819477883457536778.post-56892095092944926482011-04-15T07:55:52.214+01:002011-04-15T07:55:52.214+01:00My son is the same and I have to keep reminding hi...My son is the same and I have to keep reminding him when we are in certain social situations what he needs to say in the hope that one day he will have learnt some social skills. Have you thought about using social stories - they are supposed to be quite effective for younger children but I have to admit to never been able to get my son to listen to any sort of story. Great though that you can get him into a playscheme - have never been able to get my children into anything like that.Welcome!https://www.blogger.com/profile/07758516334730930643noreply@blogger.comtag:blogger.com,1999:blog-8819477883457536778.post-59690600312368917542011-04-06T07:24:08.719+01:002011-04-06T07:24:08.719+01:00Wow, so much has happened, hope you're feeling...Wow, so much has happened, hope you're feeling okay about it all. It sounds like a lot to take in. But it is good that you are getting support and have a programme to work with him that should help.Looking for Blue Skyhttps://www.blogger.com/profile/10010049814419812468noreply@blogger.comtag:blogger.com,1999:blog-8819477883457536778.post-24054682370602257132011-04-05T14:30:23.115+01:002011-04-05T14:30:23.115+01:00You're right Blogger did eat my comment. So I&...You're right Blogger did eat my comment. So I'll try again. <br /><br />Your story takes me right back to when Boy One was younger and trying to get diagnoses and on to the lists of people who can help. It all seems like such a long time ago. <br /><br />From this distance I'd say the explicit diagnosis doesn't make that much difference as long as you get help. So if the OTs want a kid with, say, dispraxia then give them one, if the speech therapists one one with comms trouble then, well, you know. Each department and expert has something to offer even though it seems they have different ways for you to qualify for their help. <br /><br />I found the National Autisic Society's course very helpful. I think it was called Help!. They assist in unravelling. <br /><br />The DLA forms are a total bitch. Someone once advised me to tell the story of the worst hour of the worst day of a bad week when you fill them in. Not untrue, just bleak. <br /><br />If it's any comfort, this phase does pass and now I'm trying to make sure my boy has help going up to high school!Ellenhttps://www.blogger.com/profile/09274237523956714761noreply@blogger.comtag:blogger.com,1999:blog-8819477883457536778.post-56678007537993875542011-04-01T15:11:36.556+01:002011-04-01T15:11:36.556+01:00Goodness, you've got your hands full. I coach...Goodness, you've got your hands full. I coach at a swimming club and we have two sisters swimming (8 & 10 I think) with quite serious DCD and lots of associated problems. We and they have had to perservere - repetition, repetition repetition I think, plus going in the water with them and moving their arms and legs in the right pattern, plus coping with lack of concentration - but it's been so worthwhile to see their progress. Their OT has been up to see what they're doing and has been hugely impressed with what they're managing to do. Their coordination has imporved enormously. And they've swum in a few galas and have done very well. It might be worth thinking about once nipper is old enough, and if there is a sympathetic group in you area.guineapigmumhttps://www.blogger.com/profile/13787309609601539266noreply@blogger.comtag:blogger.com,1999:blog-8819477883457536778.post-45759410192906766542011-04-01T13:44:00.546+01:002011-04-01T13:44:00.546+01:00I found your blog via BMB and just wanted to say h...I found your blog via BMB and just wanted to say hello. I have a 12 year old with ASD and a 9 year old girl just diagnosed this week with aspergers. It sounds like you had a good assessment and done relatively young too which will hopefully help you in the future. Best wishes.Welcome!https://www.blogger.com/profile/07758516334730930643noreply@blogger.comtag:blogger.com,1999:blog-8819477883457536778.post-28730777551083522862011-03-30T08:26:52.408+01:002011-03-30T08:26:52.408+01:00Gosh, my head feels dizzy just reading all of that...Gosh, my head feels dizzy just reading all of that! However, at least you know what is going on now, and are no longer in the dark. Thinking of you. Hugs xxAnonymoushttps://www.blogger.com/profile/14313560807695855956noreply@blogger.comtag:blogger.com,1999:blog-8819477883457536778.post-53610974371135207622011-03-27T22:15:43.312+01:002011-03-27T22:15:43.312+01:00Just wanted to say hello and I sympathise with you...Just wanted to say hello and I sympathise with you... we have a 3 nearly 4 year old girl diagnosed with ASD and I so know what you mean about information overload.... sometimes I just see the in-tray pile up so high it's scary. Have no idea how any mums go back to work, but particularly those with special needs children. And like for us, it's that bit more scary when it's borderline, and the sensory issues are so difficult to understand; it's all a minefield! Sounds like you have lots of professionals onboard though, so I hope they are helpful to you.Stephs Two Girlshttps://www.blogger.com/profile/09592292485187553690noreply@blogger.comtag:blogger.com,1999:blog-8819477883457536778.post-74306385062795363962011-02-24T03:46:04.367+00:002011-02-24T03:46:04.367+00:00Tilly, where are you? Hope all is okay. Life jus...Tilly, where are you? Hope all is okay. Life just takes awhile, doesn't it? Love, SSuzanhttps://www.blogger.com/profile/07132938920939258452noreply@blogger.comtag:blogger.com,1999:blog-8819477883457536778.post-46097402206194605552011-01-17T23:13:53.442+00:002011-01-17T23:13:53.442+00:00Happy New Year, looking forwards to all your news!...Happy New Year, looking forwards to all your news!SLMhttps://www.blogger.com/profile/13798928236292641626noreply@blogger.comtag:blogger.com,1999:blog-8819477883457536778.post-37326708050901151962011-01-11T20:00:56.954+00:002011-01-11T20:00:56.954+00:00Oh no! I hope it wasn't the piggy variety? G...Oh no! I hope it wasn't the piggy variety? Get well soon and happy new year!<br />Rachel xRachelhttps://www.blogger.com/profile/04290653909989504581noreply@blogger.comtag:blogger.com,1999:blog-8819477883457536778.post-14927457735964983782011-01-09T23:20:30.070+00:002011-01-09T23:20:30.070+00:00But but but..........you CAN'T do that lol. Ok...But but but..........you CAN'T do that lol. Ok, well hurry up and get well soon :) Jen@jencull (jen)http://www.thekingandeye.comnoreply@blogger.comtag:blogger.com,1999:blog-8819477883457536778.post-55212258627561595742010-12-29T21:04:14.393+00:002010-12-29T21:04:14.393+00:00Hope you had a great Christmas, and happy New Year...Hope you had a great Christmas, and happy New Year xSLMhttps://www.blogger.com/profile/13798928236292641626noreply@blogger.comtag:blogger.com,1999:blog-8819477883457536778.post-29299692362023615482010-11-25T21:52:51.374+00:002010-11-25T21:52:51.374+00:00Just out of interest did Nipper notice that they w...Just out of interest did Nipper notice that they were laughing at him? We have told J (in very basic simple terms)that he has Aspergers and sometimes his brain works differently to others but that was only because he knows that he's a little different and asked questions. <br />I think the advice that everyone has already given is probably where I'd start, talking to the teacher for example. We also bought J a book called Some Kids Have Autism. It's a very simple book and he's read it with us a couple of times now and seems to take in what the book says.......Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8819477883457536778.post-4664046937091957952010-11-24T14:21:43.240+00:002010-11-24T14:21:43.240+00:00THis must be very hard and I'm sure, as the ot...THis must be very hard and I'm sure, as the others have said, talking to the teacher must be a good start. I remember when my children were at primary, they all seemed to take for granted the handful of children who were different in some way. The kids were much better than adults at accepting differences. They were all very matter of fact about it - you may find that it doesn't take too long before most of the children are including him. You'll have to hope that the teacher is onto the ones who don't, who probably have problems of their own.guineapigmumhttp://edubuzz.org/blogs/guineapigmum/noreply@blogger.comtag:blogger.com,1999:blog-8819477883457536778.post-1381095759611069362010-11-11T22:23:55.162+00:002010-11-11T22:23:55.162+00:00Tilly I would photocopy it and get nursery and sch...Tilly I would photocopy it and get nursery and school to complete it. Any Doctor who thinks a school environment is best placed to advise on a child after only a few months is probably worthy of caution. Whilst some problems are clear early on, many teachers think it's just how the child "is". The more information you have the better. Be prepared would be my motto.<br /><br />MD xxMrsVikkitoriahttps://www.blogger.com/profile/14907024797797093935noreply@blogger.comtag:blogger.com,1999:blog-8819477883457536778.post-24625580304384663312010-11-11T22:21:29.048+00:002010-11-11T22:21:29.048+00:00I think the challenge of seeing other children res...I think the challenge of seeing other children respond differently and simply knowing the everyday stuff is a challenge for your own child are two of the toughest parts of having a child "on the autism spectrum" as the Drs like to call it. <br /><br />All I can say is, you and lovely Nipper keep good company. I've found the most fabulous families live on that spectrum (not that I'm biased or anything ;-). It gets better as they get older but whilst they are little, go with Rachel's advice - speak to teachers. Sometimes you have to push, and push and push but he is your son and they have to accept it's your job to advocate for him.<br /><br />MD xxxMrsVikkitoriahttps://www.blogger.com/profile/14907024797797093935noreply@blogger.com